Universal services
Access to comprehensive primary healthcare for all children and families supports better health and wellbeing outcomes.7,63–65 With respect to preventing child maltreatment, the WHO specifically identifies the importance of access to medical care, maternal and child health services, mental health services, pregnancy-related advice and care, identification of the risk of child maltreatment and other healthcare as needed.7 Access to quality, culturally safe, universal service provision is also in line with Building Block 1 of the SNAICC roadmap.50
For Aboriginal and Torres Strait Islander peoples, prevention measures must be implemented within a context that accounts for widespread experiences of intergenerational and complex trauma. Prevention measures should be culturally safe and focus on drivers and antecedents of maltreatment and address health inequity broadly. In the primary care setting this involves accessible and appropriate universal healthcare, understanding community needs, commitment to prevention across primary healthcare teams, including ACCHOs, general practice and allied health, and authentic engagement with, and individualised support for, families.
Monitoring general health indicators, such as growth and development and ear, teeth and eye health, can:
- help identify signs of maltreatment, particularly neglect
- provide an opportunity for parental education on positive parenting practices, child development and healthy lifestyle habits
- prompt collaboration with other health practitioners to provide support.
To ensure broad coverage of universal primary healthcare, barriers to access should be addressed, including the physical availability of health services, transport, flexible service delivery, affordability, language and cultural acceptability and appropriateness of health services.66,67 Recent national data reported the main reasons for Aboriginal and Torres Strait Islander people not visiting a GP were being too busy, discrimination and lack of culturally safety.68
Targeted services
As well as recommending comprehensive primary healthcare for all children and families (universal services), the WHO identifies that interventions in the context of high risk and/or identified harm (targeted services) may be preventive of either further harm to a child and/or maltreatment of other children in a family, thus constituting important secondary and tertiary preventive functions.7
NAICC’s roadmap Building Block 1 also calls for targeted services that are culturally safe and accessible for Aboriginal families.50
The 2017 UK National Institute for Heath and Care Excellence (NICE) Child abuse and neglect guidelines provide some general guidance where abuse or neglect is suspected.12 Primary care providers are advised to:
- support families through discussions about ‘early help’, including practical and emotional supports
- build relationships and gain consent
- understand typical and atypical child development and tailor interventions to need, including where disability is experienced
- understand vulnerability or risk factors for abuse and be aware of escalation possibilities
- understand how to work with the whole family
- for caregivers with substance misuse issues, address issues causing stress that trigger substance use.12
Primary care providers are uniquely placed to intervene and support families with complex needs (at-risk parents) to prevent child maltreatment occurring (see Box 1). They have the opportunity to build trusted relationships over time with clients, who ideally establish continuity of care with their preferred provider. Continuity of care facilitates the development of trust and feelings of safety for families. This relationship places a primary care provider in a privileged position to detect changes in family dynamics, detect stresses and identify changes in risk factors early. This early identification can optimise timing for the delivery of supports. Respectful trusted relationships and sensitivity to the needs of families and individuals can facilitate the discussion of sensitive topics and offers of referrals to services where support is needed. Pregnancy provides a particularly opportune window in this regard due to frequent contacts and represents a time in which any indicated strategies and supports can be introduced before maltreatment has occurred or to prevent harm to other children in the family.
The RACGP Abuse and violence: working with our patients in general practice (White Book),37 states that, in relation to child maltreatment, GPs should:
- recognise risk factors and intervene early to reduce risk of abuse and neglect and prevent harm (primary prevention)
- recognise harm and respond appropriately to mitigate future harm (secondary prevention)
- support the ongoing wellbeing of both the child and family to manage the long-term negative impacts of harm (tertiary prevention).
More specifically, a recommendation is made for referral to parent training and nurse home visitation programs where primary care providers identify families where violence is occurring. However, evidence of the benefit of these programs is mixed.69–72
A further practice point highlights that harmful alcohol and drug use has a strong link with child abuse and neglect, and recommends that providers work to reduce alcohol consumption in adults with children in their care, using evidence-based methods such as alcohol screening and brief interventions. More generally, the guidelines suggest offering ongoing supportive and trauma-informed care and linking to services as required.
Parents with complex needs face significant barriers to engaging with services. The barriers may be directly related to the nature of the needs (eg financial insecurity, or depression or fear of child protection involvement).73,74 People may not seek health services or may be reluctant to disclose complex needs, such as housing insecurity, for fear of this leading to a child protection notification.75 These fears are related to Aboriginal and Torres Strait Islander peoples’ complex and traumatic history of forced child removal and further reinforce the critical need for service providers to build respectful trusting relationships with families.76,77 Strategies to help develop trusting relationships include:
- being patient and persistent in initial engagement; families may have seen many providers and made previous attempts to get help
- being clear about what the purpose of the service is and what support you are offering
- setting goals with families, working towards these goals and reviewing them together
- working with a manageable caseload to allow intensive engagement
- yarning, listening and not being judgemental
- allowing families to review notes (documentation) to ensure mutual understanding
- highlighting strengths, positive changes and successes.4
The SNAICC Aboriginal and Torres Strait Islander child placement principle: A guide to support implementation highlights a number of care provision factors relevant to primary care providers that are specific to Aboriginal and Torres strait Islander child maltreatment prevention.4 To ensure effective engagement with Aboriginal and Torres Strait Islander families, it recommends the actions presented in Box 2.
When working with Aboriginal and Torres Strait Islander families, it is important to enable and facilitate the participation of individuals in decisions that affect them; this is a key principle underpinning culturally safe, trauma-informed care and aligns with SNAICC Building Block 2.50 Aboriginal and Torres Strait Islander families value involvement of more than the nuclear family and, as such, any decision making about a child should actively involve family, Elders and other significant people in the child’s life.76
Knowledge of predictive factors for maltreatment may help identify appropriate target strategies to help support parents to address complex needs and prevent maltreatment. Complex needs that warrant targeted support referrals and assistance to access these include parental alcohol abuse, high child medical needs or disability, poor social support, parental mental illness, intellectual disability, substance use issues, parents’ own experience of child maltreatment, low socioeconomic status, dependent and aggressive personality and intimate partner violence.37,62,78,79 Providers should determine and identify strengths in the family, as well assessing and responding to complex needs.4 Support services that incorporate cultural knowledge and are strengths based are more likely to have an impact.9
It should be noted that screening for child maltreatment risk is not recommended. The 2000 update of the Canadian Taskforce on Preventive Health Care (CTFPHC) guidelines for the prevention of child maltreatment recommends excluding screening for potential maltreatment due to high false-positive rates and the greater potential for harm than benefit.10 Similarly, the WHO recommends against universal screening for child maltreatment, but does recommend that providers are alert to the features of child maltreatment.11
The impact of trauma on treatment
There is emerging evidence and discourse related to the pervasive influence of childhood trauma exposure and subsequent adult trauma symptoms, and how this impacts the effectiveness of a range of health and wellbeing interventions. It has been argued that childhood maltreatment represents a highly unrecognised confounder in psychiatric diagnosis and treatment.80 The recognition of complex post-traumatic stress disorder (CPTSD) in the International classification of diseases 11th revision81 has generated research efforts aimed at determining the intervention responsiveness and treatment needs of people experiencing CPTSD, which is commonly associated with prior childhood maltreatment. Emerging evidence suggests that individuals with CPTSD symptoms experience greater treatment resistance and require longer treatment protocols to attain the same effects as those with less complex trauma histories.82 Because CPTSD symptoms have been proposed to mediate the intergenerational transmission of childhood trauma,83 this parent population may benefit from the delivery of child maltreatment prevention strategies within a context of trauma-informed care.
Culturally informed and trauma-informed services
Building Block 3 of the SNAICC roadmap calls for culturally safe and responsive practice.50 The National Aboriginal and Torres Strait Islander health plan84 draws attention to the central role of culture in the health and wellbeing of Aboriginal and Torres Strait Islander people, and the importance of reducing systematic, institutionalised racism. This can begin to be realised through the adoption of culturally informed approaches to service delivery. Given that child maltreatment most commonly occurs in the context of parental experiences of trauma and trauma symptoms, there is also a growing recognition of the value of a trauma-informed approach to care.6,18
Although there is limited empirical evidence of its effectiveness, there is general consensus that the approach represents a much needed service-level system of care that is responsive to the needs of those with experiences of trauma and is more holistic than a traditional clinical response.85 A trauma-informed approach can help avoid re-traumatisation in people with trauma histories. Re-traumatisation can result in extreme distress, re-experiencing or avoidance in response to regular primary care provision, such as sensitive inquiry, trauma screening or disclosure, invasive procedures or examination.85
Trauma-informed approaches:
- realise the widespread impact of trauma
- recognise the signs and symptoms of trauma, and the varied responses to trauma in both individuals and cultures
- respond by integrating knowledge of trauma into all policies and practices
- actively seek to resist retraumatisation through organisational polices and environments.58
Box 3 outlines the underlying principles that can help guide healthcare providers to deliver culturally safe, trauma-informed care.
Service models that are underpinned by these principles, that are culturally resonant and reflect an understanding of the impact of trauma are likely to be much more acceptable to and accessed by Aboriginal and Torres Strait Islander peoples.9,36,86
Consistent with a strengths-based approach, it is important to acknowledge the endurance and resilience demonstrated by Aboriginal and Torres Strait Islander peoples over thousands of generations. Evidence suggests that at the time of colonisation the wellbeing of Aboriginal and Torres Strait Islander children was better than that of most of their European counterparts.87 This state of wellbeing was not achieved by accident; rather, the physical, social and emotional wellbeing of children was nurtured from before birth until after death, supported by policies such as Grandmothers Law and sophisticated understandings of the importance of connectedness to wellbeing.1 It is important to recognise that many individuals and families are thriving.
Tertiary approaches
In Australia, in the absence of guidelines, national standards for OOHC were developed as a priority of the National framework for protecting Australia’s children 2009–20.88 These highlight the importance of the Aboriginal and Torres Strait Islander child placement principle and include standards around healthcare and the importance of ongoing primary healthcare for children who have experienced maltreatment.88 The standards specifically identify the need for:
- a preliminary health check on entry to OOHC
- a comprehensive health and developmental assessment provided by a specialist service
- ongoing monitoring and assessment of health and development.89
The key role for GPs at all levels of prevention is to provide comprehensive primary healthcare that is affordable and culturally safe, to make appropriate referrals, to ensure continuity of care and to actively assist people to access the care they need.4,5
GPs should ensure the primary care provided is part of a broader comprehensive, coordinated multidisciplinary primary care team. Specific attention should be paid to children at risk of and/or experiencing harm. These children are more likely to have complex health and development needs and are less likely to receive both standard and specialised health services.28,90 To facilitate this, primary care practitioners should be aware of the risk factors for maltreatment. However, care should be taken when assessing risk, because understandings of neglect and emotional abuse are subject to interpretations that may be based on societal and cultural values are incompatible with Aboriginal and Torres Strait Islander collective child-rearing practices and fail to consider the impacts of poverty (see Box 2).4,48 Although factors including poverty, housing instability, trauma exposure, mental health symptoms and alcohol and other drugs are often viewed as risk factors, they are more accurately positioned as drivers for child protection involvement48 that may not always be justified.
Before making child protection notifications based on these types of ‘risk factors’, primary care providers should ensure families are linked to targeted, culturally safe supports and services, and are actively assisted to access these through, for example, financial or transportation assistance.4
Further, primary care providers should work to address systemic discrimination experienced by Aboriginal and Torres Strait Islander families that creates barriers to health and wellbeing service accessibility. High-quality cultural competence training and familiarity with principles of trauma-informed practice can facilitate these prevention strategies.
Child maltreatment prevention parenting interventions
There is a general lack of rigorous evidence on the effectiveness of preventive interventions to address child maltreatment, and even less on their effectiveness in Aboriginal and Torres Strait Islander populations. As a result, there is a paucity of guidelines to guide best practice. The US Preventive Services Task Force guidelines (2018), based on a systematic review of 22 studies assessing the effectiveness of interventions provided in or referable from primary care, concluded that ‘the current evidence is insufficient to assess the balance of benefits and harms of primary care interventions to prevent child maltreatment’.91 The evidence suggested that the interventions had no effect on direct measures of maltreatment or on proxy measures of abuse or neglect, including child development, school performance, injuries, failure to thrive, failure to immunise and school attendance. In addition, no trials reported on harms of primary care-led interventions.91
The 2017 NICE Child abuse and neglect guidelines also found no evidence relevant to the effective prevention interventions in the UK; however, recommendations are made for secondary or targeted strategies where abuse or neglect is suspected.12 For these parents, NICE recommend considering universal home visiting services and at least six months of weekly home visiting, set up before or close after birth.
Where parents are referred to parenting programs, the UK NICE guideline12 recommends those that:
- run for 12 weeks or more
- can be tailored
- include skills in behaviour management, negative parenting beliefs and emotion management; the Triple P (Positive Parenting Program) program is indicated if anger is an issue.
For mothers in methadone maintenance programs, the UK NICE guideline specifically recommends considering engagement in the Parents Under Pressure program (see Useful resources).
The CTFPHC guidelines for the prevention of child maltreatment recommend home visitation programs, particularly the Nurse–Family Partnership (NFP) program, for disadvantaged families,10 as do the US Centers for Disease Control and Prevention (CDC), which also recommend parenting skill and family relationship approaches.92 The WHO recommends evidence-based parenting interventions informed by social learning theory (positive parenting approaches and alternatives to harsh punishment) globally.11
The effectiveness of child maltreatment prevention parenting programs is uncertain due to mixed results from a number of recent systematic reviews and meta-analyses.72,93,94 The largest of these synthesised the results from thousands of studies and found a modest effect of parenting interventions on the recurrence of physical abuse in families with substantiated or suspected physical abuse history. Interventions based on social learning theory were suggested to offer a useful secondary prevention measure.95 Program effectiveness is highly dependent on delivery setting, intensity, protocols and population characteristics. Reviews found that potentially more effective programs were delivered by professionals, were of short or moderate length and focused on improving parental expectations and self-confidence, or targeted parental responsiveness or sensitivity, whereas those that provided only support or focused on improving problem solving, personal skills or stimulating children’s prosocial behaviour were not effective.71,93,96,97
Parent participation/engagement is a major challenge for parenting programs. This may be due to poor rates of referral or low acceptability.98 The likelihood of referrals being followed up by parents may be increased by addressing factors highlighted by Aboriginal people surveyed in the Human Rights Commission report Keeping kids safe and well – your voices,99 which reported that people feeling like they are not listened to, concerns about the involvement of child protection services and experiences of racism and discrimination prevented engagement with preventive interventions, whereas increased access to information, greater cultural safety in delivery and increased investment in successful local programs were identified as promoting service engagement.99
Intervention types with some evidence of effective reduction in the number of reports of child maltreatment include cognitive behavioural therapy, home visitation, parent training, family-based/multisystemic, substance abuse and combined interventions.96
Specific programs that have been shown in more than one controlled study to be effective include intensive family therapy, such as Multisystemic Therapy for Child Abuse and Neglect (MST-CAN) and Multisystemic Therapy – Building Stronger Families (BSF), Triple P (parent training), ACT-Parent’s Raising Safe Kids program (short-term parent training) and Healthy Start (home visitation).96 The use of mainstream programs for Aboriginal and Torres Strait Islander families may not be appropriate due to cultural differences in family structure and child-rearing practices. If mainstream programs are adapted for Aboriginal and Torres Strait Islander communities, community consultation, support and involvement should be sought. Programs or services that do not engage the Aboriginal and Torres Strait Islander community are unlikely to be effective.9
Most programs have not been adequately trialled in Aboriginal and Torres Strait Islander communities to understand whether acceptability and effectiveness is generalisable to this population.
However, there are a small number of published studies and evaluations describing parenting programs for maltreatment prevention that have been adapted or designed for Aboriginal and Torres Strait Islander populations. One of most widely studied strategies, NFP,100 was developed in the US and targets first-time mothers who are teenagers, single or of low socioeconomic status.
It is an intensive nurse-delivered home visitation program from pregnancy to the child at age two years, providing education on preventive health behaviours, parenting skills and economic self-sufficiency. Reviews assessing the impact of NFP on child maltreatment from a range of countries have reported mixed results. An adapted NFP protocol targeting Aboriginal and Torres Strait Islander communities that included Aboriginal community workers showed positive results, including reduced child maltreatment, in a large trial in Central Australia.101 However, reporting since implementation in multiple sites has not assessed maltreatment impacts, and the maternal and infant wellbeing outcomes that have been reported show no difference from usual care.102
Thus, there is very little rigorous evidence to support the effectiveness of any prevention strategies. The New South Wales Government’s audit of the Their futures matter report103 drew attention to this evidence gap, highlighting that, often, funded interventions are not evidence based and are not tailored to meet the multiple and diverse needs of families and communities.104